How Dementia Affects Personal Dignity: A Qualitative Study on the Perspective of Individuals With Mild to Moderate Dementia.

نویسندگان

  • Isis E van Gennip
  • H Roeline W Pasman
  • Mariska G Oosterveld-Vlug
  • Dick L Willems
  • Bregje D Onwuteaka-Philipsen
چکیده

OBJECTIVE This article examines how dementia affects personal dignity in individuals with mild to moderate dementia from their perspective. METHOD In this qualitative cross-sectional study, in-depth interviews were carried out with 14 individuals, aged 50-94, with mild to moderate dementia who lived at home. Verbatim transcripts were analyzed making use of the principles of thematic analysis. RESULTS Although mild to moderate dementia resulted in a diminished sense of personal dignity, in general participants still felt reasonably dignified. The decline in personal dignity was generally caused by cognitive impairments resulting in diminished autonomy and changes to the individual's former identity. However, the intensity with which the decline in personal dignity was experienced depended to a large degree on the social context of the individual, with a marked difference between the private sphere of the home and the external, social environment. The study gives recommendations how others can help to sustain personal dignity in people with mild to moderate dementia. CONCLUSION Given the considerable impact the social environment has on the personal dignity of people with mild to moderate dementia, it is important in caregiving not to confine attention to health-related or even any individual aspects alone, but also to take interpersonal aspects into consideration.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

تعیین وضعیت فعالیت های روزمره زندگی (ADL) و فعالیت‌های ابزاری زندگی (IADL) در سالمندان سالم و مبتلا به اختلالات شناختی

Background & Objective: Dementia is associated with serious effects on memory, cognition and ability to carry out daily activities. There is evidence that impairment in activity of daily living (ADL) is even reported among elder patients who suffer from mild cognitive disorders. Therefore, we aimed to determine the status of ADL and instrumental activity of daily living (IADL) in healthy and co...

متن کامل

Relationship of Retinal Nerve Fibers Layer Thickness with Mild Cognitive Impairment and Alzheimer's Dementia

Background and Objective: In this study, the thickness of the retinal nerve fibers layer(RNFL) was compared among patients with mild cognitive impairment, Alzheimer's dementia, and healthy individuals (controls) using Optical Coherence Tomography (OCT) device. Materials and Methods: This case-control study was conducted on 30 patients diagnosed with mild cognitive impairment and 31 healthy sub...

متن کامل

P160: Effects of Cardiovascular Diseases on Cognitive Impairment in Elderlies

As increasing in elderly population cognitive impairment such as dementia is increasing dramatically. Alzheimer and vascular dementia are two types of dementia that can be result of cardiovascular disorder. Dementia affects quality of life and life expectancy, thus caring and paying attention to mental and somatic complementation after chronic disease is necessary and may be useful in delay the...

متن کامل

Expanding Examples of Madness According to the Concept and Criterion of Madness Perspective of Jurisprudence, Law and Psychology

Background and aim: Madness is a subject that has long been the subject of legal attention. Today, Industrial societies are confronted with a phenomenon called mental disorders and those with such disease which unfortunately is increasing day by day. Obviously, laws over time for scientific advances need to be reformed. This article explores the legal status and the way in which mental patients...

متن کامل

Health Technology Assessment of Occupational therapy in Elderly with Dementia from Ethical and Legal Aspects

Dementia is a major health problem due to the high costs of treatment, high prevalence in the elderly, severe consequences, and the imposition of physical and psychological stresses on families of the patients. Occupational therapy is one of the most important approaches among many technologies employed for helping the patient and reducing the burden of healthcare for patients. This applied stu...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • The journals of gerontology. Series B, Psychological sciences and social sciences

دوره 71 3  شماره 

صفحات  -

تاریخ انتشار 2016